thanks to some combination of HIPAA and medical liability laws, I wasn’t allowed to say anything about it, even if asked point blank
Are you sure that you understood that right? In every study I’ve helped out with, and when I’m dealing with patients, rule #1 is that the participant/patient has access to their information produced from the procedures and gets counseled by a doctor involved in the process if anything is found. There’s a neuroscience professor who famously recorded his own experience in the textbook he wrote, where he participated in an MRI study because his insurance wouldn’t approve an MRI. The tumor was found in the study, passed over to his healthcare team, and they were able to use it to get the surgery approved.
Are you sure that you understood that right? In every study I’ve helped out with, and when I’m dealing with patients, rule #1 is that the participant/patient has access to their information produced from the procedures and gets counseled by a doctor involved in the process if anything is found. There’s a neuroscience professor who famously recorded his own experience in the textbook he wrote, where he participated in an MRI study because his insurance wouldn’t approve an MRI. The tumor was found in the study, passed over to his healthcare team, and they were able to use it to get the surgery approved.